The Anonymous Widower

Have I Got Thrombophilia?

I was chatting on-line on The Times last night with a guy or even a girl, as their nick didn’t indicate gender.

I had said that a Danish study had shown that there were links between coeliac disease and blood clots. I wrote about this study in A Danish Study On Links Between Coeliac Disease And Blood Clots. Two of my on-line friends have since responded to that post with stories of coeliacs and blood-clots.

I got this reply from the person, I was chatting with.

There are some studies linking coeliac condition and the Factor V Leiden thrombophilia mutation. Several members of my family have (or had, since some have passed away) both conditions. I have the Factor V Leiden, as have both of my children. I do a lot of family history and have traced the Leiden mutation through triangulation of DNA matches and shared chromosome matches (via Family Tree DNA which goes into such detail) and I believe this is pointing to my Swedish ancestry.

I replied  and asked if the person had coeliac disease.

This was the reply.

I had some tests and a biopsy about 30 years ago to see if I had inherited the coeliac condition which had cut a swathe through my mother’s side of the family. It was negative, but I do suspect that I may have passed it on to my son. He’s not keen on getting tested although he did get a Leiden Factor V test and he is heterozygous for that. My mother, aunt, grandmother and cousins have coeliac and Leiden. Some have both and some have one or the other.

My mother was young enough to get proper advice, but my grandmother had a terrible time. She just literally faded away. Her treatment was eating raw liver and having injections of liver which left lumps under her skin. Awful.

I then looked up thrombophilia on Wikipedia. The picture of a red leg in the entry could have been of me, except that with me, It’s the other leg.

The NHS web site also gives useful information.

I need to see an expert urgently!

But at least, I’m already on the likely medication – Warfarin.

So it’s hopefully just a case of keep taking the tablets.

I must admit, I’m slightly annoyed with the medics. I have never been told, that there is a link between coeliac disease and blood clots, when evidence from the Danish peer-reviewed study and people I’ve met on-line clearly shows there is a link!

Given, all the arguments about the AstraZeneca vaccine and blood clots, more research needs to be done.

April 3, 2021 - Posted by | Health | , , , , , ,

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