Feeling Permanently Glutened
I’ve been glutened a few times and now I feel like that most of the time. I’m tired all the time, not very positive at times, my nails are very soft and I’ve had a lot of the runs. In some ways I feel a lot like I used to before I was diagnosed as a coeliac. Especially in hot weather, like we’ve had recently.
Could it be that recovering from a stroke uses up a lot of vitamin B12 and this causes the problems? I don’t know! But there are web sites that hint that B12 can aid stroke recovery. But they are sites that try to sell you all sorts of vitamins and supplements you don’t need or want.
I did find this and you can read it how you like.
In an article published by the Oxford University Press on behalf of the British Geriatrics Society, a 2006 study concluded that increasing levels of B12 following a stroke would be appropriate, though there was no conclusive evidence that an increase in the vitamin following a stroke would aid in recovery, specifically in lowering homocysteine levels and decreasing the risk of dementia.
Anyway, I’m having an injection tomorrow and that might make a difference!
An E-Mail To The University of Ulster
I wrote this e-msil to the team developing the computer games at the University of Ulster.
You could argue, that I’m in a sorry state, being a 62-year-old widower of three years, who has just lost his youngest son at just 37 to pancreatic cancer. To cap it all I have just had a series of strokes,which have left me with a gammy left hand amongst other smaller issues.
As someone who has spent nearly 50 years programming, writing reports and lately blogging on the Internet, the standard PC keyboard totally frustrates me. You want to hit shift to get a capital and you hit caps lock or control, which means the precise document you are creating gets into a mess, because you have capitalisation all over the place or say you hit something like control-W which opens a new window in Internet Explorer.
I have found a partial solution in the Microsoft Comfort Keyboard, but sadly it doesn’t quite go far enough.
One of the features of this keyboard is the ability to disable individual keys, so they don’t work.For example, I have disabled the Caps Lock key and this now means that I don’t have to rewrite large portions of documents, when I accidentally toggle the key. Having no Caps Lock is no problem to me, as I have never ever used the key in my work.
I also want to disable other keys :-
- One and/or both of the control keys – Disabling just the left would be an interesting option, as for things like control-C and control-V, which I still use would be available using the right one. My right hand is still 100%.
- The Windows key – I’ve never used that key and used with some keys it does lot of things that you don’t want to do in a Word Document or Internet Explorer. With L it locks the computer, which is something you don’t want to do inadvertantly.
- The ALT key – Who uses that? Except in control-alt-del.
The driver of the keyboard should be able to be modified to disable any key and perhaps allow certain combinations, such as those commonly used ones with Control, but that would need co-operation from Microsoft. Microsoft’s driver and control panel is a good template and starting point.
I should say that I programmed quite complex keyboard drivers in some of my software, but that is actually a level above the actual deep-level driver. When you hit a key, you first check which of the modifier keystrokes, (control, alt etc.) are depressed and take an appropriate action, so it should be easily possible to ban single keystrokes as Microsoft do in part, but allow the combinations you want. If I could write a Windows keyboard driver, I know I could do it. I also have the money to pay someone who can to create something that would ease the lives of many stroke sufferers and disabled individuals.
I have discussed this driver with my doctor at Addenbrookes and he feels it would be worthwhile, but has never come across anything like it. If you search my blog for keyboard you will find more thoughts. As this e-mail is effectively a specification for the driver, I shall probably post it on the blog, together with a link to your work.
I see that you have developed computer games for stroke sufferers. I have never played any computer games, as I prefer games to be real. I am going to get back to playing real tennis, which is a game with a world-wide handicapping system, that can be used to measure your progress. You can also find quite a few gentle players, like the elderly or kids to play with, so that you can build up your skill and power levels gradually.
Keep up the good work.
But as my Irish racehorse trainer, Tadey Regan says, “The Struggle Continues”
Some might say that publishing here is just giving away an idea, thst might be stolen by someone else.
As Rhett Butler said in Gone With The Wind, “Frankly my dear, I don’t give a damn”. If I get my driver I’ll be pleased.
Computer Games For Stroke Rehabilitation
Researchers at the University of Ulster have been carrying out trials of specially designed computer games to help rehabilitate stroke sufferers.
Ulster’s School of Computing and Information Engineering in Coleraine has collaborated on the project with fellow researchers at the Health and Rehabilitation Sciences Institute at the Jordanstown campus.
The Games for Rehabilitation project, which has been funded by the Department of Employment and Learning over three years, focuses on rehabilitation of the upper limbs and involves the player using their hands and arms to touch targets which move around the screen.
Read the full article here.
I can see the point, but I’ve never been someone for computer games. On the other hand, I’ve had some good physiotherapy in both Hong Kong and Addenbrookes. The stuff that I liked had an element of play in it. Especially, when you were playing with an attractive twenty-year-old or so ypung Chinese woman. Addenbrookes were also using a Nintendo Wii.
Memories of Childhood
I’ve said before that I spent a lot of time as a child in my father’s print works in Wood Green. I used to set all of the handbills for the Dunlop tennis tournaments held all round the UK. But my father did other jobs for Dunlop including their industrial gloves catalogues. These were uprated and reprinted each year and as I got more older and more literate, he sometimes asked me to proof read them. They had gloves for all different purposes.
Last night as I was cooking, I felt that an appropriate glove on my left hand might help. It would offer protection from say a knife, when you were cutting something, a sure grip when you picked something up and as I cook using an AGA, which has lots of hot bits, perhaps it would be insulated.
I can’t be sure, but I think Dunlop had a lightweight industrial glove all those years ago!
But something like that would certainly help!
A Visit To The Optician
Yesterday, I had my eyes tested in Vision Express in Bury St. Edmunds. They supply my glasses and the optician had examined me twice before a couple of years ago. He said that the eyes themselves were fine, but that I had lost some vision to my left in both eyes, due to nerve damage. They also refitted my glasses, so that they don’t fall off my face. My glasses had started to do this, probably because of the weight I have lost!
And all that for a tenner, as the very thorough eye test itself was on the NHS. The charge was for a digital photo of the retina, which seemed to compare well to those taken two years ago. All results will be sent to my GP.
My Poor Feet
My feet are very painful at the moment! Is it the stroke, some of the drugs I have taken like Warfarin, a lack of vitamin B12 or just the shoes, I have been wearing?
At least, I’m seeing the GP tomorrow!
Thou Shall Not Compromise
If there is one commandment that should apply to stroke recovery, it is that you should not compromise. I don’t mean in any nasty way, but you should not compromise with your previous standards.
For instance, if I take myself, there are certain personal things that I will not let slip.
- In all the typing I do, I still insist that the spelling, capitalisation, layout, spacing and grammar is correct, even though my hands make it difficult. Every time I see a mistake, it grates and I vow to get it right next time.
- If say like C, you’ve always cleaned your shoes every time you tsake them off, then continue to do it. I don’t, but then I never have!
- If you had morning routine, like shower, breakfast and then read the paper till say eleven and you are physically capable, then stick to it.
So in a simple way try to carry on as before. There is research out there from places like Glasgow and Trondheim, which actually shows this is a good idea. In Addenbrookes they got me up on the first day and I made a cup of tea. That made me feel good.
My Left Leg Is Stronger Than The Right
Years ago to try to get some strength and better feeling in my left arm that had been injured in a bullying incident, I went to see a man called Dave Southby at Fitness Works He gave me a set of execises for my shoulders and the left shoulder unfreezed and it felt a lot better. I think too, that my real tennis handicap improved.
I went to see Dave again today and he went round examining the strength and usefullness of my muscles.
Surprisingly, he found that the left leg was in fact stronger than the right. This seemed to apply more as well to the muscles of the upper leg too. Balance ala\o seemed to be better on the left leg. Was this down to the physio started early in Hong Kong, the walking I have done since or some other factor? I was very surprised, as of course my stroke was on the left side. But at least we now know what to work on!
The Levington Ship
On the way back from Felixstowe, we stopped for a glass of Aspalls at the Levington Ship.
The Levington Ship
We actually arrived at the time I needed to take my Warfarin, so I asked the landlord for a glass of tapwater. IT was no problem.
But then you’d expect that sort of sdervice from a pub that serves beer in the traditional Suffolk way by gravity.
Gravity Fed Adnams
A Visit to the Dentist
I must have known my dentist for nearly forty years. I first met him at a dinner party, we hosted at our old house in Debach. I seem to remember he came with a solicitor friend of C’s. But I’m not sure and it could have been that C was one of his patients, but then she wouldn’t have invited her dentist to dinner.
C must have gone to him for well over thirty years and I went back about five years ago, when my dentist retired and I couldn’t find another one.
Since the stroke, I’d had a very sore mouth and I felt that as I was going to the hygenist anyway, that a visit to the dentist might not be a bad idea.
It was, as he gave me a clean bill of health and felt that there were no problems. He thought that to visit your dentist after a stroke is not a bad idea, as negatives from professionals who know you, tick another problem off the list. He also advised staying off tomatoes and spices if you’re on Warfarin, as if you bite your tongue, it can be painful.
I’ve certainly felt better today, with clean teeth and a mouth that is less sore. It was a visit worth doing.
The Anonymous Widower 