Two Years On
It is now over two years since I had the stroke in Hong Kong and as you know I’ve now moved to London. So how have I improved in the last year? I’ll intersperse the comments into a copy of last year’s post.
So how am I feeling?
Bodily, I have few issues.
My nails used to be firm and hard, but now they are soft and brittle. My toenails are actually worse than my fingers. My nails were always soft before I went gluten-free and I used to bite them badly and my skin too. I’m not biting them now at all.
My nails went bad at the start of the year and aren’t too bad now. If my left hand wasn’t gammy, they would be better as I could cut them properly.
Q 1. Could it be that as my body is repairing itself from the stroke, it’s using up what I need for healthy nails?
I never got an answer to this question, except that this house has a very dry atmosphere. But they were bad soon after the stroke.
I have an almost cramp-like pain in my left lower leg, which is very like the pain I got, when I trod on a razor shell on the beach in Norfolk in the summer of 2009. It tends to get worse at night.
I still have this, but it certainly doesn’t get worse at night. I think also it’s true to say that I’ve had this problem off and on for ten years or so. Sometimes I get it in the right leg, but not at the moment.
My left humerus is also painful a lot of the time at the same place where it was broken by a bully at school. I think as the nerves for my arm and hand pass close to the bone, it affects them at times.
This is still the case and no-one listens except my physio. But then he’s paid to listen.
I did have pain at the end of my spine, but now that has virtually gone unless I sit on the wrong sort of chair. This again was an old injury, which was very much aggravated by the hospital bed in Hong Kong. I should say that I always sleep face down because of the end of my spine, which curls outwards and I get less cramp in my lower leg, which I’ve always had since a child. I can still feel the cold lino, which I used to put my foot on to cure it.
It’s almost as if my old physical problems have come back!
Q. 2 Does your brain develop new pathways to get round the pain from injuries?
I think now, that’s taken as the case.
Facially, I haven’t too much pain, but my scalp and left hand side are rather tender. My skin actually feels like it did at times before I went on a gluten-free diet before I was diagnosed as a coeliac. One of my main symptoms of coeliac disease was chronic dandruff. It went immediately, I changed to a totally gluten-free diet.
It’s come back with a vengeance this winter and I put it down to the hot dry air in the house. I’ve installed air-conditioning to hopefully kill it.
In fact, at some times, I feel like I’ve been glutened. Not seriously, but my motions are rather loose nearly all the time. Full tests at Addenbrooke’s have shown that there is nothing serious there, although I haven’t had another endoscopy to see what my gut is like.
I still do.
I have just re-read a post on this blog, which was a pain diary, describing how I was trying to control the terrible pain I was having last summer, with codeine and paracetamol. It wasn’t that successful and a few days later or so, I collapsed and ended up in Addenbrooke’s. Nothing was done and I just struggled on. And then a few weeks later, I ended up having a fit like symptom, when I was putting on my coat. I can remember feeling a bolt of pain in my humerus and then I went into oscillation. It’s funny, but I may remember something similar happening, just after I broke the bone, as I walked home from school. Addenbrooke’s put me on Keppra to stop it happening again. It hasn’t.
But I did collapse again.
Q.5 Should I keep taking the Keppra?
I’ve changed to Tegretol.
Because of the pain and because it felt like someone was pouring awful muck down my throat, I went to see an ENT specialist to see if my sinuses were bad.
He found everything clear, but thought that I was suffering from a serious pollen allergy. Now as a child, I was very sickly and was always off school. In my first year at Grammar School I virtually missed all the second term. Gradually it got better and it really improved when first we went to live on the 11th floor in the Barbican and later when I started flying aircraft for pleasure.
I’ve also had some bad winters and springs before, but not as bad as this one, when for much of the time, I just couldn’t breathe. Although in the last twenty years or so, I’ve lived on top of a hill with a strong westerly wind and my late wife and I could afford to take holidays in the sun in January. Funnily, my cardiologist,said that everybody should take two weeks in the sun every winter. I did try to do this in April by going to Greece and backpacking around the islands, but was irritated by everyone smoking all the time.
I know from travelling around the UK in the last year, that when I get out of the pollen I feel better. For instance, I went to Barnsley in March on a breezy day to see the football and felt a lot better that day. On the other hand, I walked past a tree-shredding machine at Euston a couple of weeks ago and it set me off coughing for half-an-hour.
Q.6 So why should all of this reaction to allergens get so much worse after the stroke?
On the other hand, in 2009, I was travelling to Holland a lot in the spring and suffered worse than I had done for years. I put it down to different pollens at different times. It was almost as if I got used to the English ones and then when I went to Holland, a load of different ones set me off.
Some days it’s so bad that all I can do is lie down indoors and listen to the radio. On the other hand, when I went down the London sewers, it helped my breathing immensely.
I do this less often, than I used to.
So how am I managing otherwise.
I have no problem getting around on buses and trains and of course by walking. I did fall over on a bad pavement in Upper Street in March, but haven’t hardly stumbled since, especially since I was fitted properly for a pair of trainers. I have no problems using the top decks of buses and climbing up and down ladders.
I like cooking and do quite a bit, although, as there are now so many Carluccio’s with a gluten-free menu, I am lazy quite a bit of the time.
I do eat a lot of soft comfort food, like bananas and ginger cake between meals. But my weight is still the same as it was five or six years ago.
My only problem with cooking is that my left hand diesn’t seem to like hot or cold, although the finger movement is now almost back to normal. I notice this most with my typing, where although I type mainly one-handed, I now use the left properly for the shift. Incidentally, I’ve always typed with my right hand, because of my bad left arm.
My eyesight to the left isn’t good, but in the last month or so, I’ve been able to play table tennis again, something that I couldn’t do a year ago. On the other hand, it does seem to be worst, when my eyes are streaming from the allergies.
Not really much change here, except that my nose seems to leak like a drain. My eyes are a bit better.
The VIPs Get English Wine
On the Diamond Jubilee flotilla today, the VIPs will be served three English wines.
- Sparkling Nyetimber Classic Cuvée 2007, produced from West Sussex
- Stopham Estate Pinot Blanc 2010, also from West Sussex
- Albury Vineyard’s Silent Pool Rosé 2011, this time from Surrey
I’ve said before, but West Sussex champagne is up with the best.
Location, Location, Location
With a house, business premises or a restaurant, it’s all about location.
As a coeliac and lover of Italian food, I like Carluccio’s restaurants and eat out in them fairly often.
However, the location of their Liverpool restaurant, is in one of the best places I’ve seen for a restaurant of its type.
I just went out of Lime Street Station walked down the hill for about four minutes, through the bus station and then I was on Whitechapel, a pedestrianised street, that leads between the bus and train stations to Liverpool One Shopping Centre and the Pier Head. The restaurant, is also not far from the Walker Art Gallery and St. George’s Hall.
Incidentally, just round the corner is a taxi rank and Tommy Steele’s statue of Eleanor Rigby.
So it’s in a great location to either start or finish your visit to Liverpool City Centre.
It was also much busier than I expected, as I was at an odd time for lunch. But then I seem to remember that Liverpudlians tend to be very efficient in their trips to a restaurant, as they’ve always got something important to do afterwards.
Virgin’s Fairtrade Coffee
Coffee on trains can be rather variable to say the least. But this one was better than most.
It’s Fairtrade too!
Mastercard at the Olympics
Not on VISA’s nelly, as they’ve removed the cash machines that accept them, as is reported here.
I have all three of VISA, Mastercard and AMEX, and generally have them all with me, but for most transactions I use Mastercard, as it helps me keep track of my expenses. AMEX I use for holidays and travel, so that the insurance kicks in and VISA generally takes up space in my wallet.
But no sponsor, is going to tell me which card to use!
I assume they use those credit cards with Lizzie’s picture on them.
Anyway what would I be able to buy at venues, as there might not be any gluten-free food, in which case, I’ll have to take my own.
All The Way To Eastfield for a Loaf and a Moan
This afternoon, as I had nothing better to do, I decided that as I’d failed to get any bread this morning, that a quick trip to Eastfield was in order. Waitrose didn’t have the bread I wanted, but they did have a brown Genius and one of Genius’s excellent fruit loafs. So I bought both and then went into O2 to moan about my Junkberry. It’s not their fault, as they didn’t come up with the crap design. I think to be fair too, the Junkberry bubble has now burst with the share price heading towards Antartica. I’m afraid I don’t buy products from losers, unless the price is absolutely right.
I’ve already had an e-mail from Tonik, saying that my two old Nokia 630i will be back with me soon. In fact, knowing couriers as I do, I suspect that they’ll get my phones from Enfield, quicker than O2 could swap my phone.
I can do without a phone in the interim anyway, as no-one outside of a few people and scammers ever phone me these days. And the things I want to do with the phone, like texting where buses are, it can’t do.
I Can Now Cook Scrambled Egg Again
I’ve now got my new cooker, which fits neatly in the space, where the other one made itself a nuisance.
My New Zanussi Electric Cooker
The space at each side can be used, whereas the other cooker was so wide it just blocked the cupboard doors from opening.
I can now cook scrambled egg again.
Scrambled Eggs, Smoked Salmon and Cold Potatoes
I didn’t have it on toast, as my local Waitrose won’t stock any bread at the moment, so I used smoked salmon. Coeliacs, like me, often cook extra potatoes and eat them as snacks, so I added some to the plate, as I have a massive bowl fill of them.
I think too, that I’m feeling better, as the cooker is not creating all those oxides of nitrogen, that could be poisoning me.
I’m Getting Paranoid About Waitrose
Coeliacs are very particular about what they eat.
My list of must-have foods apart from the usual things, like meat, fish, vegetables and fruit includes :-
- Waitrose seeded, thin-sliced loaf. It makes good toast and lovely sandwiches.
- Waitrose semi-skimmed goats milk. As good as any, and there is no smell.
- Eat Natural gluten-free toasted muesli with vine fruit.
- St.Helen’s Farm semi-skimmed goats milk yoghurt. I have this with my breakfast cereal.
- Rowse organic honey. Again, I have this with the breakfast cereal.
But my branch in Islington does its best to annoy me :-
- They haven’t had the thin-sliced loaf for weeks. But they always seem to have the thick-sliced, which has the texture of the stuff with which they make IKEA furniture. It is ideal for making sandwiches for masochists!
- Recently, there have been days, with the full-fat goats milk, but not the semi-skimmed.
- They haven’thad this for months, but they’ve always got lots of unsold packets of the buckwheat version. So it means, I have to go to Sainsbury’s next door.
- I make sure, I always have the yoghurt in the fridge, as sometimes this isn’t for sale.
- The same applies to the honey.
And then of course there’s the check-outs, which were designed by a man or woman with two perfect hands.
It is any wonder, that I’m getting paranoid?
I suppose this afternoon, I had better go all the way to Eastfield to get a loaf.
Pasty Tax
As a coeliac, I can’t eat pasties and most takeaway food, so the pasty-tax was for me creating a level playing field in taxation.
It just shows how the country wants to eat themselves to hell and then travel there in a dump truck.
Vandalism In The Service of Ignorance
The title of this post comes from a phrase, describing the protestors, in the third leader of The Times, which defends the work at Rothamsted to create a strain of wheat , which has a natural repellant effect to pests, by crossing it with mint using gentic engineering,
Genetic engineering is a touchy subject to many, but properly used it should benefit mankind. The aim of the Rothampsted experiment is to produce a strain of wheat that uses less pesticides.
On the other hand, I would be against genetic engineering, that produced wheat with the so-called terminator gene, that meant farmers couldn’t use some of this year’s crop for next year.
There are now drugs coming on the market, that have been created by genetic engineering using plants or hens’ eggs as a starting point. Would these protestors stop this process as well? If I suffered from a disease, where the drug could be produced by genetic engineering, I would not be happy.
As I said, provided that the purpose of creating the organism by genetic engineering has a moral purpose, I can see no reason to ban it.
I’m also a coeliac, which is a minor genetic disease. I suspect a few decades down the line, they’ll be able to correct the faulty genes in babies by some clever genetic modification.
The Anonymous Widower 