Coeliac Journey Through Covid-19 – Coeliac Diagnosis
Coeliac Diagnosis
My health was very variable as a child.
I would often have months off school and my health only really improved, when my parents bought a second home in Felixstowe, where we spent most of our holidays.
Perhaps it was the sea air, as going to Liverpool University didn’t seem to adversely affect my health.
I had been having gut problems for years and then in Autumn 1997, I didn’t see my GP, but a very elderly locum, who as I had recently had my fiftieth birthday, gave me a present of my first blood test.
It turned out that I was very low on B12 and a course of B12 injections was arranged.
As the injections didn’t raise my levels, an appointment was made to see a consultant at Addenbrooke’s Hospital in Cambridge.
It was a Monday, when I went to the appointment and after a quick chat and no examination, the consultant said that they would take some blood. Which they did!
Within forty-eight hours a letter arrived on my door-mat saying that I was probably coeliac and it would be confirmed by endoscopy.
Two endoscopies without sedative or anaesthetic were performed and I was confirmed as coeliac.
The first was performed by Dr. Richard Hardwick and the second by Dr. Rebecca Fitzgerald.
My gut health has been better since, I’ve been on a gluten-free diet, backed up by three-monthly B12 injections.
A few years later, I was talking to a gastroenterologist in Cambridge and he told me that he thought he had more coeliac patients than any other in England.
The manager of Carluccio’s in the city, also told me that they sold a very high percentage of gluten-free food.
Were Cambridge testing a genetic test for coeliac disease or was it just a Whack-A-Coeliac policy?
They certainly had everything geared up for high-speed diagnosis. They even did the endoscopies without a sedative, so they didn’t need any recovery beds.
Coeliac Journey Through Covid-19 – Introduction
Introduction
I am coeliac and I had an interesting journey through the Covid-19 pandemic.
My experiences will be laid out in this narrative, as I believe they might be of use to someone.
I was born in 1947 and after a good education at Minchenden Grammar School in North London, I read Electrical Engineering and Electronics at Liverpool University, where in addition to getting a B. Eng degree, I met and married my late wife; Celia. We had three boys in the early seventies.
My working life was mainly spent in the solving of mathematical problems and writing software to perform complex calculations mainly in the fields of data analysis, project management, statistics and the solving of simultaneous differential equations.
The Artemis software, that I wrote in the 1970s, controlled the building of the Channel Tunnel, was the software of choice in the development of the North Sea oil and gas fields and was even used by NASA to plan the missions of the Space Shuttles and their refurbishment after each flight.
My business partners and myself sold the company to the American aerospace company; Lockheed in the 1980s.
Since then, I have been involved in various ventures.
The most successful was to back two inventors, who had developed an aerosol valve that used nitrogen as the propellant.
We sold that on to Johnson & Johnson, but the experience led to the development of the Respimat Inhaler for Boehringer Ingelheim.
Coeliac Journey Through Covid-19
I am writing this presentation for a meeting, in the next few days, so there will be several pages with similar titles to this.
St. Pancras To Heathrow By Elizabeth Line
I ate breakfast in Le Pain Quotidien in St.Pancras station this morning and afterwards I took the Elizabeth Line to Heathrow.
I took Thameslink for one stop to Farringdon station and got a Elizabeth Line train direct to Terminal 2 and 3 at the Airport.
Note.
- The train I took was going to Gravesend. I suspect it was because of engineering work.
- An empty train passed through, whilst I waited. I’ve never seen that before on Thameslink in St. Pancras station.
- I travelled in the front of the Thameslink train for the one stop.
- The change at Farringdon station was very quick, as it was just down in the lift and the Heathrow train was waiting.
These are some notes on a fast change using the lifts between Southbound Thameslink and the Elizabeth Line at Farringdon station.
- Get the first lift of the two that arrives, if like me, you can use escalators.
- If it goes up, walk across the station at street level and get the two serial escalators down to the Elizabeth Line.
- If it goes down, take the lift to the Elizabeth Line.
If you can’t manage escalators, you have to wait for a lift going down.
I have some observations.
Meeting And Greeting At St. Pancras Station
From my position in Le Pain Quotidien, I was able to watch passengers leaving and arriving at the Eurostar terminal opposite.
There were quite a few people, who were meeting and greeting others.
In Effects Of The ULEZ In West London, I said this about meeting and greeting at Heathrow.
But as it now so easy to get to the Airport using the Elizabeth Line will more people use the new line to meet and greet and say goodbye to loved ones or business associates. Since the Elizabeth Line opened, I’ve met a couple of friends at Heathrow, who were passing through.
Will the Elizabeth Line increase the number of trips to the airport, by making meeting and greeting easier?
If it does, then it will put more pressure on the services to Heathrow Airport.
Seats In St. Pancras Thameslink Station
These pictures show some of the large number of seats in St. Pancras Thameslink Station.
Should there be more seats along the platform at stations on the Elizabeth Line, where passengers change trains?
My Train To The Airport Was Crowded
Ten in the morning on a Sunday, is not the time I’d expect to be busy, but I estimated it was about ninety percent full, judging by the few empty seats.
There Were Eight Trains Per Hour (tph) To And From Heathrow
From Real Time Trains, it looks like the following trains were running.
- Elizabeth Line – Abbey Wood and Terminal Four – 2 tph
- Elizabeth Line – Abbey Wood and Terminal Five – 2 tph
- Heathrow Express – Paddington and Terminal Five – 4 tph
My train to the Airport had been going to Terminal Four.
Is eight tph the maximum frequency, that can use the tunnel to the Airport?
Is The Elizabeth Line Diverting Passengers From Heathrow Express?
When I returned from the Airport, my Elizabeth Line train left about ten minutes after a Heathrow Express train.
- The Heathrow Express train wasn’t very full.
- The Elizabeth Line train was very full.
- Passengers got out at all stations.
- I got out at Tottenham Court Road.
It will be interesting to see the Heathrow Express passenger figures.
Which Is The Best Elizabeth Line Station For A Marks and Spencer?
Because their gluten-free food is so much better than other shops, this is important to me.
- There are larger stores at Ealing Broadway, Tottenham Court Road (West), Liverpool Street (West), Stratford and Ilford.
- There are food only stores at Heathrow, Paddington, Bond Street and Liverpool Street (East).
Today, I used the large store by the Western entrance at Tottenham Court Road station.
But, if you want to avoid walking, Stratford is probably the easiest.
Gluten-Free Fish And Chips In Skegness
I had some excellent gluten-free fish and chips in Skegness at the Atlantic Fish Bar.
The restaurant is conveniently located just off the walking route between the seafront and the station.
As I had excellent gluten-free fish and chips on the front at Lowestoft, it does seem that the coast may be the place to go to get them.
Budweiser To Convert Second UK Brewery To Hydrogen
The title of this post, is the same as that of this article on The Engineer.
This is the sub-heading.
Samlesbury Brewery in Lancashire is set to be powered by green hydrogen from 2025, according to new plans announced by owner Budweiser Brewing Group.
This paragraph outlines what will be done at Salmesbury.
The Samlesbury Net Zero project will see the brewery paired with a new hydrogen production facility (HPF), delivered by UK hydrogen services company Protium. Situated adjacent to the brewery, the HPF will provide green hydrogen to meet the thermal demand of the brewing processes, as well as the building’s other heating requirements.
Note.
- A refuelling station for hydrogen-ready HGVs will also be developed as part of the project.
- Heat from the HPF will be recovered and used in Budweiser’s bottling process.
- This is the second project involving Budweiser and Protium, after one at Magor in South Wales.
- Beers produced at the facility include Budweiser, Stella Artois and Corona.
I may have had the odd bottle of Corona in the States, but I’ve generally drunk real ale only since, I started having halves of Adnams with my father at the age of thirteen.
Now, because I’m on Warfarin, I more or less exclusively drink zero-alcohol beers, most of which is Adnams, straight from the brewery.
I’ve yet to find any beer which is less than 0.5 % alcohol, has contained enough gluten to have an effect on my gut.
I have discussed this with experienced brewers and they are not surprised, as the brewing process for zero-alcohol beers doesn’t use much barley.
Conclusion
We need more integrated projects like this, that both decarbonise industrial processes and provide filling stations for hydrogen-powered vehicles.
The Luck Of The Genes
There’s an article in The Times, which is entitled When It Comes To Success, Luck Can Trump Intelligence.
It got me thinking about my life.
I have been pretty successful in life, and I put it down to winning the gene lottery, with a part-Jewish father and a part-Huguenot mother, who taught me hard work and everything they knew. So were my genes forged by religious persecution in the harsh conditions of the ghettoes of Europe?
But luck has always played a great part in my success. On the way, three or four successful men have chosen me for projects and I’ve repaid them by succeeding. I’ve been at the heart of the creation of two world-changing companies.
But the luck turned bad, a dozen years ago. My wife and our youngest son died from cancer and I had a serious stroke.
But the genetic lottery of being coeliac and therefore having B12 injections, has meant, I’ve made a good recovery from the stroke. The B12 injections is a stroke recovery method from the States, but is considered quackery over here. I believe it saved my life.
And then during the pandemic, those coeliac genes and the gluten-free diet I need for health, seem to have protected me from a severe dose of the covids. I’ve yet to find a fellow coeliac, who has had one either. Scientific research from Italy and Sweden, is also backing up my observations.
Lady luck has smiled on me. Or does the devil, look after her own?
Nightmare On The Buses
The title of this post, is not the title of a horror remake of the popular 1970s-sitcom’ On The Buses, but a description of my journeys on a 141 bus today.
Until, last Friday, I had two buses; the 21 and 141 to take between my house and Moorgate, which is an important destination for me.
- There is a large Marks and Spencer food store there, where I regularly buy the gluten-free food, I must have as a coeliac.
- There is a LEON there, where I regularly have my gluten-free breakfast.
- Moorgate station is a good transport interchange from which I regularly start journeys over London.
But now there is only one bus; the 141.
In November 2021, I wrote The Great Bus Robbery, where I said this.
What is TfL’s latest crime?
The 21 and 271 buses are going to be combined into a new route between Lewisham and Highgate, which will go nowhere near the Balls Pond Road.
So we’ll just have the one bus route to the City of London.
On past form, if TfL say they will increase the frequency, I wouldn’t believe them.
This was my conclusion.
We will need the 21 bus to provide us with a route to Crossrail, as the 141 buses will be full.
The 21 bus is needed where it is and mustn’t be stolen.
Note that Crossrail is now called the Elizabeth Line.
Today, I made three journeys between my house and Moorgate station and this is what happened.
Journey 1 – Southbound
I arrived at the bus stop and after five minutes a 141 bus arrived.
But it was full and didn’t open the door to let any of the waiting six passengers board.
After another three minutes, another 141 bus arrived and we squeezed on.
But there wasn’t any seats left and I stood all the way to Moorgate.
Journey 2 – Northbound
I only had my breakfast and as I had things to do at home, I returned fairly quickly after finishing my breakfast.
Partly, this was also because a 141 bus turned up with some seats available.
But it was a lot closer to capacity, than Northbound buses at about the same time last week.
Journey 3 – Northbound
My third journey started at about four in the afternoon, after I’d been out to take some pictures and buy a few food items in Marks and Spencer.
I had to wait seven minutes for a 141 bus and as there was a 76 bus a couple of minutes in front of it, I took that, with the intention of changing halfway.
I was able to get a seat.
In the end, the 76 bus got stuck in traffic and I walked to my intended change stop and waited there for the 141 bus, which was without a seat, so I stood for three stops to home.
It was one of the slowest journeys, I’d had between my house and Moorgate station.
Day 2 – February 7th – 2023
I arrived at the bus stop and found a lady, who had been waiting for an hour-and-a-quarter.
I had no problem coming home, as I went to Liverpool during the day and got a taxi back from Euston.
Day 3 – February 8th – 2023
Perhaps, they’d heard our pleas, but a bus turned up after a couple of minutes with plenty of spare space.
I even got a seat.
Going home, at about 10, there wasn’t a spare seat.
Revenue per bus, is certainly rising.
Conclusion
On the evidence of the first three day, it appears that there is not enough capacity without the 21 bus.
Coeliacs And Migraines
Yesterday, I watched BBC Morning Live about migraines.
I used to suffer from migraine-like symptoms, especially, if I was in a room with small tungsten downlights. One real tennis court at Cambridge caused them and the other didn’t, as the lights were different.
In 1997, I was diagnosed as a coeliac and went gluten-free.
I’ve not had the symptoms since!
I also stopped nail-biting, which I’d done since I was about five. Incidentally, I’ve had others tell me, they stopped nail-biting after being diagnosed as a coeliac and going gluten-free.
On the program, the doctor has just said that women have a 1-in-5 chance of having a migraine, whereas with men it’s 1-in-15.
The NHS web site says this about who’s affected by coeliac disease.
Coeliac disease is a condition that affects at least 1 in every 100 people in the UK.
But some experts think this may be underestimated because milder cases may go undiagnosed or be misdiagnosed as other digestive conditions, such as irritable bowel syndrome (IBS).
Reported cases of coeliac disease are around 3 times higher in women than men.
Now there’s a thing!
Should Those With Long Covid Be Checked For Coeliac Disease?
One of my Google Alerts picked up this interesting page on the British Medical Journal.
In response to this paper on the journal, which was entitled Long Covid—An Update For Primary Care, a retired GP named Andrew Brown had said this.
The update reminds us that alternative diagnoses should be considered in patients presenting with long covid symptoms. I suggest that screening for coeliac disease should be added to the list of conditions to look for. Coeliac disease occurs in more than 1% of the population, with many more cases undiagnosed. Typical symptoms of fatigue and GI problems are the similar to those of long covid.
As a non-medical person, I would agree, as after the Asian flu of 1057-58, I was off school for a long time with long covid-like symptoms and my excellent GP; Dr. Egerton White was very worried.
But at the time, it is now known, I was an undiagnosed coeliac.
So was my coeliac disease meaning that I couldn’t fight the flu?
I cover the link between coeliac disease and long covid in more detail in Covid Leaves Wave Of Wearied Souls In Pandemic’s Wake.
The Anonymous Widower 